FEGADACE develops more than 65 information and training activities in one year to improve the quality of life of people with acquired brain damage and their families, and to contribute to the prevention of this disability.
The main objective of FEGADACE is to contribute to improving the quality of life of people with acquired brain damage and their families. This end is pursued in various ways. For example, multidisciplinary rehabilitation care programs, information and support for families, and therapeutic care services (both daytime and residential) are provided by the five federated associations. But there are also other actions that are promoted by the federation that we explain in this article.
Lines Of Action
The actions implemented by FEGADACE, in addition to those already mentioned, are the following:
Promotion of epidemiological and social research.
Creation and dissemination of scientific knowledge in the field of acquired brain damage.
Political incidence.
Sensitization of society and information regarding this disability.
Training related to acquired brain damage for different professional and social groups.
In relation to the last two actions, FEGADACE develops collaboration programs with the Xunta de Galicia, through the Consellería de Política Social, the Escola Galega de Saúde para Cidadáns and other public and private collaborators, to sensitize, inform, raise awareness, and train to the population of our autonomous community about acquired brain damage. To do this, it works with different groups and collectives, and from different approaches.
Promote Knowledge About Acquired Brain Damage
The actions that focus on information, awareness, and training address issues as important as these:
Its causes (mainly stroke, in 80% of cases, and associated with the aging of the population but also with current lifestyles).
Risk factors.
Preventive measures.
Warning signs and symptoms; action guidelines.
The importance and approach of care in the community and family environment.
The rights of people with acquired brain damage and their families.
The analysis and provision of the social and health care resources available in the autonomous community.
Promoting respect for diversity.
15 Years With Awareness Activities
FEGADACE began to carry out awareness activities when it was created, in 2007. Fifteen years later, this work has not stopped. On the contrary, in 2022 a total of 65 awareness-raising and training activities were carried out, in which around 2,000 people participated.
Among these activities there were awareness talks aimed at the general population and with rural women’s associations; didactic workshops carried out in the school environment with infant, primary and secondary education courses; various training courses in face-to-face and online format; and the Annual Conference of a scientific-informative nature, aimed at professionals involved in brain damage care.
After analyzing the results of the 2022 activities and reviewing the experience accumulated in all these years, the federation highlights the following:
More Women In Activities
There is a huge difference between the number of women and men who attend these activities. Analyzing the data for 2022, we see that a total of 420 women and only 66 men attended the awareness activities. Similarly, in training activities more than 90% of the students were women.
Ages Of Those Who Participate
There is high participation of people over 50 years of age in awareness activities aimed at the general population and voluntary assistance. The majority age groups are:
from 50 to 59 years old, with 56 people attending.
from 60 to 69 years old, with 107 people attending.
from 70 to 79 years old, with 84 people attending.
Regarding these participation data, a very positive assessment can be made. And it is that one of the objectives of the Federation in carrying out this type of activity is to raise awareness among people over 50 years of age about the incidence of brain damage, since from 55-60 the probability of a brain injury occurring increases. ictus.
On the contrary, a great change is detected in the training activities, since in the courses carried out online the average age of the students is 39 years and in the face-to-face training the majority age range is between 40 and 59 years.
High Degree Of Satisfaction
After observing the satisfaction surveys, it can be stated that very positive results were obtained in all the activities carried out. The percentage of people who are satisfied or very satisfied with the activities is very high: reaches 94%. In turn, more than 95% of the people who attend the awareness-raising activities consider that more activities of this type need to be carried out.
In general, carrying out these activities has made it possible to detect that, despite the great advances achieved in recent years and the very positive data that have been obtained, it is necessary to continue informing, raising awareness, and training about acquired brain damage.
For this reason, from the Federation and its member entities (ADACECO in A Coruña, ADACE Lugo, Alento in Vigo, DCA Ourense, and Sarela in Santiago de Compostela), we continue to design, develop and carry out this type of activity. The objective is to expand the actions and try to reach all age groups and social sectors to achieve greater visibility and improve the general knowledge about this disability. This knowledge will result in an improvement in the quality of life of people with acquired brain damage and their families, as well as in the prevention of this disability.
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